(07-07-2008, 12:38 PM)Turkey link Wrote: It's dead. They don't live much.. afaik.
Upon further investigation. 2 people in the U.K are living with the condition, and are 18 and 16 (i think). Although they manage to live, their life isen't really good.
But, I don't think their condition was as extreme as this.
Babies with this condition only live up for a few hours, and are in extreme pain whilst living for that short time.